YAY!!! markus has grown

well we had more doctor appointments this week. Genetics and endocrinology both went well.the gentetic doctor told me well he has Fetal alcohol syndrome.....i felt like saying Duh!!! i knew that since i saw his picture a year before he came home ....also he has a midline disorder another Duh!!!what does he think ACC is?????but the good thing is no more appointments to that doctor.
the endocrinologist was much smarter with my boy..Markus has grown 7cm since his last visit a year ago and put on almost 3 pounds..so although he isnt growing alot he is growing , so for the time being no worry about growth hormones...we talked about the fact he doesnt chew yet, he isnt potty trained and he isnt communicating much...she said if you was in an orphanage with no loving bond to a mother or father . you would be behind as well.. she can see a huge improvement in him and says whatever we are doing it is helping so keep it up...

kinda good news....

well the doctor said the MRI showed there is no change in the lipomas in the spine. so this is a good thing, but he is concerned that Markus is still in diapers. he said he could go into the spine and that the lipomas out at the base of the spine and see if it will help with nerves and potty training. but i got lots of problems with the thought of another surgery on my baby. first off if he is only at about 8 months to 18 months on developmental stages then would potty training fall into a stage somewhere which might explain the delay. second there it allot of people who have C-ACC who never learn to use the toilet. might that be why we struggle with this issue. i understand he is almost 6 and still in diapers but lets face it i am the one changing him so whats the problem .

Tubes seem to be helping .......well maybe ...

well last Wednesday Markus got tubes in both ears..they hope it will help keep ear infections down and also help with his speech but to soon to tell..tomorrow we go back for a MRI and visit with the neurosurgeon. praying there is no change in the spine and they will just tell us they will keep an eye on it. on the speech front Markus has begun to say mama alot more. he also babbles constantly.Steve actually got him to copy him counting to 3...very cute might i add.

Markus never fails to make my day

well my poor baby boy has been sick since the new year began. he has been cooped up at home for 10 days not even getting to go to his therapies. but today we finally got him out and he was so rotten at therapy... he was listening to what they had ask him to do then he would turn his head and ignore them totally and laugh at them...he has decided to that standing and yelling for mom- mom is something he enjoys doing today as well... he also told me to "go away".. i was trying to bandage his poor little hands so they will finally get better.

over due post...

well it has been a while.. but to catch up on our wonderful sons. Aleks has grown about 5 inches in the last 2 years , putting on some weight so he looks really good..he attends preschool 3 days a week and is doing great. he continues to pick up on everything...loves to sing and play. We see the genetics doctor again in feb. then we will see how well he is actually growing ..other then a few ear aches he is doing awesome...(thanks be to God).
now on to Markus ... he will be having tubes put in his ears this month and the dentist hopes to do some dental work the same days if it works out..he will be going for an MRI at the end of the month to see how the lipomas in his spine is doing. the genetics doctor still says he is in the 50 percentile of 1 year olds on weight, 50 percentile of 2 year olds on height...and well his head has only grown about a cm in two years... he is not going to school yet momma cant let him go just yet...potty trainning aint happening ....
we went last month and met up with Young O. the boys best buddy from Estonia . it was great seeing them together again..O's family are wonderful people.it was great to actually meet face to face and be able to talk to someone who understands what you went through to bring the boys home and where they came from.

Grrr.. i need more hours in the day....

well we have had markus back to the childrens hospital and now he has several more appointments coming up in 2011... He is getting tubes in his ears in jan. the neuro doctor has set up a MRI on his spine to make sure it isnt getting worse.. and the cleft pallate we continue to wait and see..

more to learn about

well when we was at dollywood on saturday it was so hot everyone was sweating, well not markus but his skin was hot enough to burn you . we noticed that he was sweating so we had to cool him off. when we was home on sunday he did nothing but sleep and cool off.. he stayed hot til Sunday night, i thought he was getting sick again. but it was still where he had gotten so hot on Saturday.. apparently unlike aleks who has adjusted and started to sweat in our climate ..markus with his ACC may never figure out to sweat to cool down...his brain may not regulate his tempeture...this explains last year every time he got in the sand box his fever would spike at over 104....