Thursday, January 27, 2011

kinda good news....

well the doctor said the MRI showed there is no change in the lipomas in the spine. so this is a good thing, but he is concerned that Markus is still in diapers. he said he could go into the spine and that the lipomas out at the base of the spine and see if it will help with nerves and potty training. but i got lots of problems with the thought of another surgery on my baby. first off if he is only at about 8 months to 18 months on developmental stages then would potty training fall into a stage somewhere which might explain the delay. second there it allot of people who have C-ACC who never learn to use the toilet. might that be why we struggle with this issue. i understand he is almost 6 and still in diapers but lets face it i am the one changing him so whats the problem .

Wednesday, January 26, 2011

Tubes seem to be helping .......well maybe ...

well last Wednesday Markus got tubes in both ears..they hope it will help keep ear infections down and also help with his speech but to soon to tell..tomorrow we go back for a MRI and visit with the neurosurgeon. praying there is no change in the spine and they will just tell us they will keep an eye on it. on the speech front Markus has begun to say mama alot more. he also babbles constantly.Steve actually got him to copy him counting to 3...very cute might i add.

Friday, January 14, 2011

Markus never fails to make my day

well my poor baby boy has been sick since the new year began. he has been cooped up at home for 10 days not even getting to go to his therapies. but today we finally got him out and he was so rotten at therapy... he was listening to what they had ask him to do then he would turn his head and ignore them totally and laugh at them...he has decided to that standing and yelling for mom- mom is something he enjoys doing today as well... he also told me to "go away".. i was trying to bandage his poor little hands so they will finally get better.